The reality of diagnosis
DDI exists because these gaps are not abstract. They are missed conversations, in surgeries, in families and in communities. This is where we start.
Fewer people from Black, Asian and minority ethnic backgrounds receive a timely dementia diagnosis compared with white patients.
Average delay in diagnosis for African Caribbean patients.
South Asian communities are twice as likely to develop dementia, yet face more barriers to diagnosis.
Of families from these communities report feeling dismissed by healthcare professionals.
Black and Asian people with dementia never receive a formal diagnosis.
Figures reflect published UK research on ethnic disparities in dementia diagnosis.
About DDI
DDI connects patients, carers, family members and healthcare professionals in one place, so that support is shaped by real experience, not just information. Open conversation, shared honestly, changes how people live with dementia.
Connect with carers and clinicians who understand the specific pressures of your situation and your community.
Guides, stories and resources written for the communities they serve, not translated as an afterthought.
From community boards to one-to-one messages, the platform is built for dialogue, not broadcast.
The platform
Ask questions, follow topics and join conversations with people who get it.
Patients, carers and clinicians sharing what actually happened, and what helped.
Printable templates, trackers, and a starter kit for the first 48 hours after diagnosis.
Accredited modules and case-based webinars for those working in care.
A regular place to talk it through with other carers, in real time.
How it works
No waiting list, no referral. Most people are talking within ten minutes of signing up.
Tell us whether you're a carer, a patient, a family member or a professional.
Create profileFollow topics and connect with others who share your experience or expertise.
Culturally relevant guides and expert-led stories, when you need them.
Your voice helps someone else feel less alone. That is the whole point.
A note from our founder
"DDI began as a spark during a university module on evidence-based care. It quickly became something personal: a vision to change how we talk about dementia, and how we support the people living with it."
With eight years in domiciliary care, I have seen dementia through the eyes of families and patients. Those moments shaped my understanding of compassionate, person-centred care, and pushed me to build DDI to close the gap between clinical practice and real-world conversation.
FAQ
